MND Support at Home for People Living with Motor Neurone Disease
Nurse-led, deeply personal care and support that honors the person, the home and the life within it
Arrange a private consultation
Call 1300 674 886
Practical, flexible in-home support that changes as your needs change. We help with personal care, household tasks, home maintenance and equipment, and we work with your health team and funding so you can stay at home with the people you love.
MND and Support at Home
Motor neurone disease (MND) is a group of neurological conditions in which the nerve cells that control the muscles stop working. Over time this affects how a person moves, speaks, swallows and breathes.
MND progresses differently for every person. Some people experience changes over months, others over years.
Because needs can change quickly, good MND support is planned ahead. The right help at the right time reduces the physical load on family carers, lowers the risk of falls and hospital admissions, and gives you more energy for the things that matter to you.
Our support is designed around you. You choose who comes into your home, when they come and what they help with. Your plan is reviewed often so the support keeps pace with your condition, rather than reacting after a crisis.
New to MND? Your state MND association is an excellent first contact. In Victoria, MND Victoria (link: https://www.mnd.org.au/) provides advisors, support coordination and an equipment loan service. The national MND Infoline is 1800 777 175.
A 2025 report commissioned by MND Australia estimated that 2,752 Australians are living with MND, about 1 in every 10,030 people.
Types of Help at Home for
People with MND
We offer three main types of in-home help. You can use one, two or all three, and change the mix as your needs change.
Personal Care
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Respectful, unhurried help with daily routines, delivered by trained support workers who understand MND.
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Showering, bathing, toileting and continence care
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Dressing, grooming and skin care
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Safe transfers and repositioning, including ceiling and mobile hoists
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Help with eating and drinking that follows your speech pathologist's mealtime plan
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Medication prompts and support
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Morning, evening and overnight support
Domestic Support
Help with the household tasks that take the most energy, so you and your family can focus on each other.
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Cleaning, vacuuming and bathroom cleaning
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Laundry, ironing and bed changes
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Meal preparation, including texture-modified meals
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Grocery shopping and errands
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Transport and company at appointments
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Social support and community access
Home Maintenance
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Keep your home safe, accessible and comfortable as your mobility changes.
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Gardening, lawn mowing and yard tidying
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Minor repairs, light globes and smoke alarm checks
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Clearing pathways and removing trip hazards
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Gutter cleaning and window cleaning
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Help to coordinate ramps, rails and bathroom modifications
Respite and Carer Support
Family carers carry a large load. We provide in-home respite, from a few hours to overnight, so carers can rest, work or attend their own appointments. We can also help carers find information about Carer Payment and Carer Allowance.
Talk to a care manager at Luxe Care today on 1300 674 886
NDIS AND MY AGED CARE FOR MND AT A GLANCE
In Australia, the funding pathway for MND support mostly depends on your age when you apply. People under 65 apply to the National Disability Insurance Scheme (NDIS). People 65 and older use My Aged Care. Both systems have priority pathways for people with MND.
NDIS Support for People with MND (Under 65)
To apply for the NDIS you must be under 65 at the time you apply, live in Australia, and be an Australian citizen or hold a permanent or Protected Special Category visa. The NDIS is not means tested. MND Australia advises that people with MND can use a priority access pathway, so tell the NDIS you have MND when you call.
An NDIS plan can fund supports such as personal care, help with household tasks, therapy, assistive technology, home and vehicle modifications, transport and support coordination. Plans usually run for 12 months, but because MND needs can change rapidly, a shorter review period is sometimes suggested.
1. Call the MND Infoline (1800 777 175) or your state MND association for guidance.
2. Complete the NDIS Access Request with your GP, neurologist or another health professional.
3. Attend your planning meeting and explain how your needs may change in the next 6 to 12 months.
4. Choose your providers. We can deliver supports and work with your support coordinator.
If you became an NDIS participant before you turned 65, you can keep your NDIS supports after 65.
My Aged Care and Support at Home (65 and Over)
The Support at Home program replaced Home Care Packages and Short-Term Restorative Care on 1 November 2025. After an aged care assessment, people approved for ongoing services receive one of 8 classifications, with funding based on their care needs. MND Australia reports that in 2026, annual budgets range from $11,000 at classification 1 to $78,000 at classification 8.
Support at Home also has three short-term pathways:
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Assistive Technology and Home Modifications (AT-HM) scheme: upfront funding for equipment and home changes. MND Australia reports up to $15,000 within a 12-month period, with priority for people with MND.
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Restorative Care Pathway: short-term intensive allied health and nursing care.
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End-of-Life Pathway: approximately $25,000 for 16 weeks of extra in-home care for people with a prognosis of approximately three months or less.
The Commonwealth Home Support Programme (CHSP) can also fund entry-level services, such as help around the house, meals and transport.
What you pay under Support at Home: clinical supports, such as nursing, are fully funded. From 1 October 2026, approved personal care is fully funded when it is in your support plan and you have enough budget available. You may pay a means-tested contribution for independence and everyday living services, such as cleaning and gardening.
Topic | NDIS | My Aged Care(Support at Home) |
|---|---|---|
Age | Under 65 when you apply | 65 or older (50 or older for Aboriginal and Torres Strait Islander people) |
Means tested | No | Yes, for some service types |
First step | Access request (call 1800 800 110) | Aged care assessment (call 1800 200 422) |
Funding | Reasonable and necessary supports in an individual plan | One of 8 ongoing classifications, plus short-term pathways |
Equipment | Assistive technology funded in your plan | Assistive Technology and Home Modifications (AT-HM) scheme |
Equipment and Assistive Technology for MND
The right equipment protects your independence and your carers' safety. Your occupational therapist, physiotherapist or speech pathologist assesses what you need. We then help you get it set up and make sure every support worker knows how to use it correctly.
Common Equipment for People with MND
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Mobility: walkers, manual and power wheelchairs, scooters
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Transfers and positioning: hoists, slide sheets, electric beds, pressure-care cushions and recliners
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Bathroom: shower chairs, commodes, grab rails
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Daily living: adaptive cutlery, cups and dressing aids
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Communication: text-to-speech apps, speech-generating devices, eye-gaze systems, voice banking and voice amplifiers
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Breathing support: non-invasive ventilation (for example BiPAP), prescribed by your respiratory team
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Home modifications: ramps, step-free showers, doorway widening
How to Get Equipment
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NDIS participants: assistive technology and home modifications can be funded in your plan.
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Support at Home participants: equipment can be funded through the AT-HM scheme.
Victorian residents: people registered with MND Victoria can borrow equipment from the MND Victoria Equipment Service at no direct cost, after a request from an allied health professional. You can borrow equipment while you wait for NDIS or Support at Home funding.
Our role: we report changes we notice, follow manual handling plans, keep equipment clean and charged, and tell your therapist when something no longer fits your needs.
Multi-disciplinary
MND Care Coordination
MND care works best when everyone works as one team. We make sure your in-home support fits with the advice of your health professionals, and that information moves quickly when your needs change. We only share your information with your consent.
Who Is in Your MND Care Team?
You and your family: Your goals and choices lead the plan.
GP: Coordinates your health care and referrals.
Neurologist and MND clinic: Diagnosis, monitoring and specialist advice.
Occupational therapist: Equipment, home modifications and daily living.
Physiotherapist: Mobility, comfort and safe transfers.
Speech pathologist: Communication and safe swallowing.
Dietitian: Nutrition, weight and feeding options.
Respiratory team: Breathing assessment and ventilation.
Palliative care team: Symptom management, comfort and planning ahead.
Psychologist or social worker: Emotional support for you and your family.
MND association advisor: Information, education and equipment.
Support coordinator or care partner: Manages your NDIS or Support at Home funding.
How We Coordinate Your Care
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Free consultation. We meet you at home to learn about your routines, goals and current supports. Call Luxe CAre Manger Today on 1300 674 886
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Care plan. We write a care plan that includes instructions from your health team, for example manual handling and mealtime plans.
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Matched team. We match you with a small, consistent team of support workers who receive MND-specific training.
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Regular reviews. We review your plan at least every three months and whenever your needs change, and we tell your coordinator early if you need more funding.
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Planning ahead. We support your advance care planning wishes and work alongside palliative care so care at home can continue.
Support for families
Caring for someone living with MND is an act of great love, and it can also be demanding. We regard families as partners in care.
We offer:
• A dedicated point of contact for questions and updates
• Regular care reviews with family members, with the client’s consent
• Clear communication about changes in health or wellbeing
• Guidance on navigating the aged care system and available funding options
• Respite care at home, from a few hours to extended periods
You do not need to carry this alone. Call Luxe Care 1300 674 886
AREAS WE SERVE Across Melbourne and the Mornington Peninsula
Luxe Care provides private home care across Melbourne’s inner suburbs and the Mornington Peninsula.
We support clients in areas including Hawthorn, Malvern, Camberwell, Kew, Toorak, Armadale, South Yarra, Glen Iris, Balwyn, Brighton, Mornington, and surrounding areas.
Private Home Care in Hawthorn & Melbourne’s Inner East
Private Home Care in Malvern, Armadale & Toorak
Private Home Care in Brighton & Bayside Suburbs
Private Home Care in Mornington & the Mornington Peninsula
call 1300 674 886 or complete the online enquiry form at www.luxecare.com.au/contact
Our MND care AT HOME services
at a glance
At a frequency you choose, our respite care services will keep your loved one safe and comfortable while you take a much-needed break.
While you (or the primary carer) take a break, our carers can offer:
Comprehensive in-home assessment and a bespoke, regularly reviewed care plan
Routines, reminiscence, meaningful activities and social outings
Home safety assessment, falls prevention and attentive supervision
Meal preparation, light housekeeping and errands
Continuous support for greater peace of mind
Compassionate end-of-life care at home, where required
MND CARE AT HOME FAQS
Caring for someone can be rewarding - but everyone deserves time to rest and recharge.
At Luxe Care, we’ll help you make the most of your MND care options in Melbourne and Mornington with a plan tailored to your lifestyle.
Call 1300 674 886 or use our contact form to schedule your free consultation today.
You can apply to the NDIS if you are under 65 when you apply, live in Australia, and are an Australian citizen or hold a permanent or Protected Special Category visa. MND is a permanent, progressive disability, and MND Australia advises that people with MND can use a priority access pathway. The NDIS is not means tested.
If you are 65 or older (or 50 or older for Aboriginal and Torres Strait Islander people), you access government-funded care through My Aged Care. The main options are the Support at Home program and the Commonwealth Home Support Programme. You need an aged care assessment first.
Yes. If you became an NDIS participant before you turned 65, you can keep your NDIS supports after 65. You can also choose to move to aged care, but you do not have to. If you were not accepted into the NDIS before 65, you will need to use My Aged Care.
It depends on your funding. NDIS participants do not pay contributions for supports funded in their plan, and the NDIS is not means tested. Under Support at Home, clinical supports such as nursing are fully funded, and from 1 October 2026 approved personal care is fully funded when it is in your support plan and you have enough budget available. You may pay a means-tested contribution for other services, such as cleaning and gardening. We give you a written price list and a service agreement before any service starts.
People with MND can use priority pathways for both the NDIS and Support at Home. MND Australia advises that when MND is recorded during an aged care assessment, Support at Home and assistive technology funding should be approved and received within 30 days. In Victoria, people registered with MND Victoria can borrow equipment from its Equipment Service at no direct cost while they wait for funding.
MND affects each person differently, and needs can change quickly. Support often starts with domestic help and some personal care, then increases to include hoist transfers, help with eating and drinking, communication devices, breathing support and overnight care. We review your care plan at least every three months and whenever your needs change. MND Australia notes that a six-month NDIS plan review is sometimes suggested because needs can change rapidly.
Yes. With your consent, we share updates with your GP, neurologist or MND clinic, allied health team, palliative care service, MND association advisor and NDIS support coordinator or Support at Home care partner. Our support workers follow the care instructions that your health professionals give, for example manual handling plans, mealtime management plans and equipment guidance.
Talk to Us About
MND Support at Home
Whether you have just been diagnosed, are waiting for funding, or need more help than you have now, our care coordinators can help. We will listen, explain your options in plain language and arrange a free home visit.
Book a free care consultation using our contact form
You do not need to carry this alone. Call Luxe Care 1300 674 886
Important: this page gives general information only. It is not medical, legal or financial advice. Funding rules can change, so check current details with the NDIS, My Aged Care or your MND association. In an emergency, call 000.
Luxe Care is a;
My Aged Care Provider ID: PRV-45015
NDIS Provider Registration Id: 4-M31W9FU
Registered DVA Community Nursing Provider